Sunday, July 17, 2011

SJS/TEN Awareness Walk

August is Stevens - Johnson Syndrome Awareness month!
Please join us for a walk around the lake as we spread the word about SJS/TEN
Meet other SJS Survivors and enjoy a relaxing day in beautiful Colorado

Saturday August 13th at 10am to 1pm

Lake Arbor Park, Arvada, Colorado
 6400 Pomona Dr, Arvada, CO 80003
See mapquest link for directions:

$10.00 registration donation to:

SJS Foundation
PO BOX 350333
Westminster, CO 80031

 T-Shirts are available for $5.00 each in limited sizes

We will also have handmade SJS Awareness Angel Pins.
These pins were made by SJS survivors and SJS volunteers and are available for $1.00 at the walk.

Rooms available at the Westminster Hilton Doubletree Hotel
for the nights of Aug 12 & 13
Located at 8773 Yates Drive, Westminster, Colorado 80031
Reservations 877 383-8277 or 303 427-4000
Ask for Stevens Johnson Syndrome Walk rate $89.00 per night
The hotel will be providing guests courtesy shuttle service to  Lake Arbor Park

Registration form:

Proceeds from the walk will be used toward research of an ocular surface device currently being designed to prevent ocular surface damage during an episode of SJS or TEN, and repair existing damage to the tear glands, cornea and ocular surface of SJS survivors.

August is SJS Awareness Month
 to view this years proclamations
please click on the link below:
 2011 SJS Proclamations

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